Supporting family caregivers in West Hawaii since 1996
It takes a whole community to care for our caregivers.
Resources in West Hawaii
for Caregivers and Their Families
✧ All phone numbers are (808) unless a different prefix
is listed. To receive a printed booklet or emailed PDF of this
resource guide, please contact us and we'll promptly send
you one. You can also pick up a printed booklet
at many of the agencies listed below.
Updated August, 2020
Due to Covid-19, many groups may be suspended
for now, or are meeting online. Please follow up
with contact numbers for current information.
Caregiver, Patient and Family Support
In-Home Care and Respite Providers
Supported Living and Respite Care Facilities
Senior Recreation and Activities
Hospice and Grief Recovery
Office of Aging (HCOA) — 323-4390, hcoahawaii.org. West Hawaii Civic Center, Building B, 1st Floor.
HCOA represents the county in planning, coordination, advocacy and administration of programs for senior citizens. It is a gateway for information and referrals to many services and programs. It includes the Aging and Disabilities Resource Center (ADRC), an information and referral agency that helps those of all ages who have disabilities. The ADRC also screens applicant eligibility for the Kupuna Care program, which provides in-home services for persons 60 and older. The free Senior Services Directory, a useful listing of many agencies on Hawaii Island, is available at the office.
Parks and Recreation Department, Elderly Activities Division — hawaiicounty.gov/pr-elderly. West Hawaii Civic Center, Building B, 1st Floor. This county agency sponsors the three programs listed right below with italic headings.
Elderly Recreation Services (55 and older) Kohala / Waimea / West Hawaii, 323-4340
Numerous senior recreational activities and events are organized by the county, including aerobics, line dancing, ukulele lessons, karaoke, ground golf, swimming, sewing, hula and more. Contact them for a current class schedule. Also see “Senior Recreation and Activities,” below.
Hawaii County Nutrition Program (60 and older) — 961-8726
Provides two nutrition services, generally five days a week except holidays:
✧ Meals on Wheels, home delivery for the housebound.
✧ Congregate dining, a four-hour program which includes hot meals, exercise, education and socialization, at 15 sites around the island. Call to request transportation.
Coordinated Services for the Elderly (60 & older) — 323-4300
Offers a wide variety of services, which include assessing needs, making referrals, and providing information about available programs. Key services include:
senior citizen ID cards
Assistance in navigating public programs such as Medicare, Medicaid and Social Security.
Community Paramedicine Program — 339-5882, [email protected]
The Hawaii Fire Department paramedics offer home safety checks, fall prevention education, and smoke detector installations. They will also provide physical, social and home environment assessments to identify needs and make referrals. (Please don’t call 911 for these services.)
STATE OF HAWAII
Adult Protective Services (A branch of the Department of Human Services)
Reporting and intake hotline: 832-5115 — humanservices.hawaii.gov/ssd
Investigates allegations of abuse and neglect of vulnerable adults and makes referrals to appropriate services.
Senior Medicare Patrol (SMP) — (800) 296-9422
Trained volunteers help Medicare and Medicaid beneficiaries prevent, detect and report health care fraud.
State Health Insurance Assistance Program (SHIP) — (888) 875-9229
Certified senior volunteers assist Medicare beneficiaries with enrollment, coverage questions, and complex issues.
Social Security — Hilo Office (855) 572-4860, 111 E. Puainako Street, Hilo, HI 96720;
nationwide number (800) 772-1213, socialsecurity.gov
A virtual office staffed by Hilo personnel via webcam is available every second and fourth Thursday of the month from 9:00 a.m. to 1:30 p.m. at the West Hawai'i Civic Center, Building C. First come, first served until 30 slots are filled. This service is limited to new or replacement Social Security cards, name, address and banking information changes. Benefit signups and consultations must be done at the Hilo office.
Kona Vet Center — 329-0574, 73-4976 Kamanu Street, Kailua-Kona; vetcenter.va.gov
Services include individual, group, marital, family, sexual trauma, and bereavement counseling to veterans of combat and their families, as well as to anyone who has experienced military sexual trauma. Other services/referrals provided are assistance in applying for VA benefits; medical, employment, alcohol/drug assessments; general information; and referral to other community resources. The Vet Center also provides outreach in various locations in the community.
VA Kona Community-based Outpatient Clinic — 329-0774, 75-377 Hualalai Road, Kailua-Kona
https://www.hawaii.va.gov/locations/Kailua_Kona_Hawaii.asp. Primary health care to eligible veterans using available resources.
Veteran’s Administration Caregiver Support Line — (855) 260-3274
A national phone support line staffed by licensed professionals, who provide telephone counseling to caregivers and immediate assistance on available services for veterans.
TSA Cares — (855) 787-2227
Extra assistance during the security screening process for travelers with disabilities, medical conditions and other special circumstances. Preferably, call 72 hours prior to traveling with questions about what to expect at the security checkpoint, or ask for a "passenger support specialist" at the airport.
CAREGIVER, PATIENT & FAMILY SUPPORT
Education, support group meetings and services to
caregivers, patients and families.
AARP Caregiving Resource Center — (877) 333-5885, aarp.org/caregiving Resources, tools and support to help caregivers manage the care of their loved ones.
Ageless Mobility — (843) 224-9493, Gary Jaster, [email protected]
In-home wellness service provides personalized fitness and flexibility programs for those over 50 or post-rehab.
ALS Support Group — Eva Koenig, 464-0208
You can reach the Golden West Chapter, which includes Hawaii, at (866) 750-2572, or email them at [email protected]
Alzheimer’s Disease — As of August, 2020 we don't have a regional coordinator for the Alzheimer's Association on the Big Island. Please see this website's Groups & Classes page for the most current information.
Alzheimer’s Association 24/7 Helpline — (800) 272-3900
Alzheimer’s Association national website is a trove of useful information. The caregiver support section is especially worthwhile: alz.org/care/alzheimers-dementia-stress-check.asp A six-page brochure on caregiver stress is available to download at alz.org/national/documents/brochure_caregiverstress.pdf
American Cancer Society, Hawaii Island — Hilo Field Office: 935-0025
National Patient Service Center: (800) 227-2345, cancer.org
Brain Injury Support Group, hosted by Karen Klemme, RN, meets on Zoom the second Wednesday of each month starting at 6 p.m. To participate, please email [email protected] and she’ll send you details. This group has been meeting in Kona for 26 years. For more information, search for "Kona Brain Injury Support Group" on Facebook.
Cancer Support Group (Honalo) — 323-2732, Shirley
Informal meetings the last Tuesday of each month from 7 - 8:30 p.m. at Teshima’s Restaurant in Honalo.
Caregiver Conversations (Waimea) — 896-6417, Karyn Clay. A long-standing group which meets at Tutu’s House at 11 a.m. the first Wednesday of each month, to collaboratively educate each other about the caregiving journeys and what can be have learned along the way.
Caregiver Sharing Group —(773) 294-8773, Joann D'Addio, M.Ed., [email protected]
Sponsored by HCCN, this group meets on second Saturdays at 11 a.m. The group is now meeting in a safely distanced outdoor location in Kona, with Zoom also available.
Diabetes Prevention Program — 326-3889, Claudia Hartz, Community Health Educator
Offered by West Hawaii Community Health Center, this year-long support program (approved by the Centers for Disease Control) is also available online. One-on-one education is available for prediabetics and those with diabetes type 2.
Family Support Hawaii — 326-7778, familysupporthawaii.org
A non-profit which works with families and children through child development programs, early Head Start, newborn support from ages 0-3, and fatherhood training.
Hawaii Island HIV/AIDS Foundation — 331-8177, 74-5620 Palani Road, #101, Kailua-Kona; hihaf.org
The HIV/AIDS Foundation’s Kona office offers a full range of services: case management, medical access assistance, disability claims, housing, financial aid programs, counseling and referrals, as well as a food pantry. The office also offers free HIV, syphilis and HEP-C testing, and a needle exchange.
Hospice of Kona — 324-7700, hospiceofkona.org
Bereavement services which include individual counseling and a variety of support groups. See “Hospice and Grief Recovery,” below.
Hui Laulima — 989-4241, Linda Jeffrey, [email protected]
A consortium formed in 1999 to encourage collaboration, particularly around matters affecting West Hawaii’s youth and families. It comprises over 50 of West Hawaii’s health and human service providers, faith-based groups, community associations, businesses, government agencies and concerned individuals, and provides information and referrals to non-profit, state and county resources.
Hui Malama Ola Na ‘Oiwi — 969-9220, hmono.org/classes/
Healthcare agency based in Hilo, with classes in Kona and North Hawaii on diabetes, hypertension and nutrition. Call or check the website for class schedule.
Lewy Body and Other Dementia — 936-4949, Jim Echle, lbda.org
Get in touch with Jim for information about Lewy Body dementia.
National Federation of the Blind — 238-1426, Dianna Jones Ph.D., [email protected]il.com, or Facebook: National Federation of the Blind West Hawaii Chapter.
Meets 2nd Friday of each month at 11:30 a.m. at Hale Halawai, Kailua-Kona. The chapter provides information and support to those dealing with low vision or blindness and those diagnosed with diseases which cause vision loss.
Neighborhood Place of Kona — 331-8777, npkona.org
Supports families, single parents, and grandparents with minor children. Neighborhood Place offers parenting classes, help with social services, support for special-needs IEP meetings, and more.
North Hawaii Hospice — 885-7547, northhawaiihospice.org
Free individual support for adults, youth and caregivers; also groups when three or more have signed up. See “Hospice and Grief Recovery,” below.
Parkinson’s Disease — parkinsonshawaii.org/big-island
Kona support: Third Wednesdays, 1-3 p.m. at West Hawaii Community Health Center, 75-5751 Kuakini Hwy. Info: Tom St. John, (925) 785-6093 or [email protected]
Kona Dance for Parkinson’s: Dr. Marie Snyder, (609) 577-2349, [email protected]. Enjoyable movement for all levels, with no experience needed; Tuesdays at 10 a.m., Kona Dance & Performing Arts, 81-973 Halekii St., Kealakekua.
Waimea: Joel Cohen, [email protected] Events, classes and a newsletter. Meets 2nd Wednesday each month at Tutu’s House in Waimea.
Powerful Tools for Caregivers Classes (PTC) — 322-5157, www.hawaiicaregivers.org/powerful-tools Provided by Hawaii Community Caregiver Network (HCCN), PTC is a series of free classes led by trained community volunteers, which help caregivers learn to take care of themselves as they care for others.
Remember thru Music is a no-cost program providing customized music on MP3 players to those diagnosed with memory loss. Founded in 2016, and closely mirroring the national program developed by Music and Memory (www.musicandmemory.org), the program has distributed over 50 iPods and MP3 to kupuna throughout the Big Island of Hawaii, as well as neighbor islands.
Tutu’s House (Waimea) — 885-6777, https://www.tutushouse.org/activities/
This unique resource for the North Hawaii community offers a full calendar of exercise classes, support, games, discussion and education groups. Current calendar and newsletter are available on their website.
West Hawaii Mediation Center — 885-5525, whmediation.org
Free or low-cost family caregiver mediation and conflict resolution services, through confidential dialogue in a neutral setting.
IN-HOME CARE AND RESPITE PROVIDERS
Caregiving support services in your home
CareResource Hawaii — 326-7021 (partner of Kuakini and Queen’s Health Systems) careresourcehawaii.org
Private nursing, home health aides and chore services.
Kohala Home Health Care — 881-4711 (partner of North Hawaii Community Hospital, affiliated with Queen’s Health Systems) https://www.queens.org/north-hawaii/services/kohala-home-health-care/kohala-home-health-care-nhch
Services to homebound patients, on doctor’s referral. Focuses on North Hawaii, and also offers physical, occupational and speech therapy in Kona.
North Hawaii Hospice — 885-7547, https://northhawaiihospice.org
In-home assistance with personal care, respite, pain and symptom management. (See also “Caregiver Support” and “Hospice and Grief Recovery, ” below.)
Private agencies providing home care services, including skilled nursing care, physical therapy, and home health aides, in Kona and North Hawaii:
SUPPORTED LIVING & RESPITE CARE FACILITIES
Facilities which provide short and long term residential assisted living and nursing care, day care and temporary-stay respite care; referral agencies.
Ano’ano Home Care (Kapaau) — 885-9390, anoanocarehome.com
A residential care home for up to five adults over 55, with an RN and acupuncturist on staff.
Blue Water Resources — 443-5112, 808bluewaterresources.com
Referrals to licensed adult foster homes and case management after placement, serving all of Hawaii Island.
Health Services Hawaii — 959-1130, healthserviceshawaii.com
Case management in foster family and adult residential care homes, serving all of Hawaii Island.
Ho’oNani Care Home (Waimea) — 896-6417, hoonaniadultcareservices.com/care-home/
Provides 24/7 live-in care for five adults needing assistance with activities of daily living and safety.
Ho’oNani Day Center (Waimea) — 896-6417, hoonaniadultcareservices.com/day-center/
Serves up to 10 adults Monday through Saturday in a social care setting.
Hospice of Kona — 324-7700, hospiceofkona.org
Located on a peaceful coffee plantation in Holualoa, Nakamaru Hale residential care home can accommodate up to five hospice residents in semi-private rooms for respite, transitional or longer-term care during the final months of life.
Kona Adult Day Center — 322-7977, konaadultdaycenter.com
A safe and supportive daytime environment for respite care of adults with a variety of medical conditions.
Life Care Center of Kona — 322-2790, lifecarecenterofkona.com
A sub-acute and long-term care facility which provides
✧ Skilled 24-hour nursing care.
✧ Physical, occupational and speech therapy for both inpatients and outpatients.
Regency at Hualalai (Kona) — 329-7878, regency-pacific.com
The Regency staff is on site full time. Many organized daily activities are scheduled for residents. Programs and services include:
✧ Supported residential living for those over 55, including all meals, transportation, activities, outings and personal assistance.
✧ Respite program for temporary stays, which includes all services.
✧ “Moments” 12-unit memory care program.
SENIOR RECREATION AND ACTIVITIES
Rolling Around Hawaii: A Wheelchair User's Travel Guide — curbfreewithcorylee.com/2015/03/16/hawaii-wheelchair-accessible-vacations/
Deep and Beyond — 491-3970, deepandbeyond.org
Creates opportunities for people with disabilities and disadvantaged youth to explore nature, participate in adventure activities, and experience freedom. Check website for dates.
Elderly Recreation Services — 323-4340, hawaiicounty.gov/pr-elderly
Hawaii County sponsors the following senior clubs, and organizes numerous senior recreational activities from Kealakekua to Kohala. Contact Elderly Recreation Services for a current brochure and class schedules. Note: contact numbers may change; for the latest information, please call Elderly Recreation Services at 323-4340.
Meets Wednesdays at 10 a.m. at Hale Halawai (Kailua Kona). Activities and programs for people over 55, including speakers, games, socializing, and excursions, as well as holiday and birthday celebrations. Call to confirm schedule.
Captain Cook Senior Club — 328-2097, Edythe Maeda, [email protected]
Meets Tuesdays at 9 a.m. at Yano Hall in Captain Cook.
Honaunau Senior Club — 960-4871, Pam Hinch, [email protected]
Meets Thursdays at 9 a.m. at the Painted Church.
Kohala Senior Club — 889-6502 (cell) or 889-0383 (home), Faye Yates, [email protected]
Meets Mondays at 9 a.m. at Kohala Intergenerational Center.
Waikoloa Senior Club — 883-2424, Stephanie Stearns, stephaniestearns16 @gmail.com
Meets 3rd Mondays at 9 a.m. at Waikoloa Village Association Community Room. See the Waikoloa Senior Center web page, waikoloa.org/page/29336~630509/Waikoloa-Senior-Center, for information about Senior Club meetings and events, and van transport to Kona and Waimea.
Waimea Senior Club — 885-4307, Pat Lewi, [email protected]
Meets 2nd Tuesdays at 9 a.m. at Lily Yoshimatsu Senior Center.
HOSPICE AND GRIEF RECOVERY
Hospice programs are individualized for your family, to provide support for family caregivers in caring for a loved one at the end of life. Services may include regular home visits by medical personnel and counselors; medications, supplies and equipment; respite care; and care in a nursing facility if needed. There is no charge to the patient or family for hospice care.
North Hawaii Hospice — 885-7547, northhawaiihospice.org
The Life and Death Wellness Center (Kapa’au) — charlottecharfen.com/life-death-wellness-center/
Helping to change the experience of dying and caregiving through education and community support.
Inspired Endings (Kapaau) — inspiredendings.org
Provides end-of-life doula training and programs for caregivers.
Legal Aid Society of Hawaii — (800) 499-4302, senior hotline: (888) 536-0011; legalaidhawaii.org
Hualalai Center, 75-170 Hualalai Road, Suite B303A, Kailua-Kona
Legal Aid is a non-profit public-interest law firm. There are several ways to access their services:
✧ Those under 60 can get free or low-cost service, depending on income and family size.
✧ For faster and easier service, Legal Aid contracts with the Hawaii County Office of Aging to give free assistance to those over 60 who are referred by HCOA. Before contacting Legal Aid, please call the Office of Aging at 323-4390 for a referral.
✧ West Hawaii Community Health Clinic can refer their patients of any age to an in-house Legal Aid attorney. Call the main office at 326-5629, or directly to the attorney at 746-4541, to schedule an appointment.
Volunteer Legal Services Hawaii — 313-8210, vlsh.org
A non-profit organization offering low-cost legal services. Telephone counseling and referrals to local attorneys in Kona are provided.
New laws of interest to family caregivers
Our Care, Our Choice Act, adopted January 1, 2019
The Our Care, Our Choice Act (OCOCA) is a Hawaii law that permits terminally ill adults with the capacity to make medical decisions, and who meet certain other criteria, to be prescribed an aid-in-dying medication. Hawaii is the seventh jurisdiction to enact such a law. Kōkua Mau is a neutral source for information on the new law: kokuamau.org
Kupuna Caregivers Program, July 2017
Recognizing the tremendous contributions of caregivers, this bill provides financial assistance to support employed caregivers so they can remain in the workforce. Contact the County Office of Aging at 323-4390 to apply. Funds may currently be limited. For details: https://www.hawaiiadrc.org
The CARE Act, July 1, 2017
The CARE (Caregiver Advise, Record, Enable) Act helps family caregivers when their loved ones go into the hospital and as they transition home. The CARE Act requires Hawaii’s acute care hospitals to:
✧ Provide the patient with the opportunity to designate a family caregiver on their medical record.
✧ Notify the caregiver prior to the patient’s discharge or transfer to another facility.
✧ Offer the caregiver instructions on the medical tasks needed to care for the patient at home after discharge.
Aloha friends, please help us keep this list current. If you know of a resource that’s not included, or find an outdated contact on the list, kindly contact us. Thanks!
Hawaii Community Caregiver Network (HCCN) is an all-volunteer 501(c)(3) nonprofit organization which has been supporting family caregivers in Kona since 1996. Our past activities have included:
✧ The Family Caregiver Conference, a day-long conference held periodically in West Hawaii
✧ Powerful Tools for Caregivers, a program of free classes that help family caregivers learn to thrive
while giving care
✧ Monthly Caregiver Sharing Group
We are now emphasizing online education and support. You can find information about these programs on the home page of this website.